This week we have our Spina Bifida clinic appointment (they accept VACTERL patients too). He sees 5 specialists all at once. It is bound to be a multi-dread week. First of all, the only appointment we could get was on Jenn’s birthday, ugh. Two and three are more serious matters.
They took hip x-rays at his last appointment. He gate is getting more unsteady and he has been falling a lot. His scoliosis is probably getting worse as is his hip alignment is not ideal. Hopefully neither will require some mid-evil intervention.
Lastly, his neurogenic <sp?> bladder. Thus far we have gotten away with not catheterizing him. But we are concerned our luck may be running out. He has nearly 90% urinary continence. But the 10% is of concern, especially as he approaches send grade. His occasional accidents have gone unnoticed at school thus far, but I am sure our luck will not hold out another year.