Well we are home. To the best of our ability, we are trying to get back to â€œnormal.â€ Ethan is still on bed rest for the next two days. But it beats a hospital bed on any day.
We are still a bit frustrated. We are considering a second opinion, but that means either going to into DC or up to The Johns Hopkins in Baltimore. They have suggested we join a Spina bifida support group since Ethanâ€™s syndrome is closely associated with SB. It would be nice to have other parents to chat with.
I am somewhat dreading church and work. With all the time I have taken off, the cat is out of the bag. That means I will have to tell the same story 90X and suffer the â€œoh you poor bastardâ€ look. I know people mean well, but I would just as soon write about this and then put it behind me.
On another front, Ethanâ€™s birthday is Monday. He is turning the big 5. I cannot believe it. I am surprised how much I enjoy being a father. When Jenn was pregnant, I was terrified of the awesome responsibility we had taken on. I was especially frightened by having a son. My father and I never quite connected. (they put him on another mail route shortly after I was bornâ€¦just kidding) I was worried that we would like totally different things. But from what I can tell (I am still new at this), if you spend time with your kid, they develop the same interests you have. Who knew?
I know my dad was really disappointed that I did not become a cop like him. But I figured out from an early age that being a cop was not a job so much as an all consuming vocation. It becomes your total identity. Which is cool, but it does mean sacrificing family time.
I hope Ethan does not become a test engineer. All it does is give you a big gut from sitting at a desk all day.
Anyway he is turning 5. I am so proud of him. In spite of all the crap that life has thrown at him in his limited time on Earth, he is a happy well adjusted kid. He loves technology. He could run the VCR long before the age of 3. When he was four he watch me burn a CD. That was about 300 CDs ago. This boy has the mix â€œtapeâ€ down to an art. Anything technological he can master in minutes.
He also loves numbers. He could count to 100 by the time he was three. We were in a Burger King one time in California. He asked his Grandpa how old he was. When he said 55, Ethan counted down to 0. The whole restaurant applauded. He had just turned 3.
He also reads. This is a miracle to me. I struggled with reading until college. He reads and comprehends at a very high level. Unfortunately Jenn and I can no longer spell to have secret conversations while he is in the room.
His latest obsession is Mario. We are both trying to rescue the Princess. It is a kick.
If only he was tall enough to mow the lawn.