We are breathing a sigh of relief today. This whole week we are getting the results of several tests. Today was urology. Thursday is neurology. Without going into long and exhaustive detail, let me share what we have heard. Because of his spinal abnormalities, Ethan has some nerve damage in his lower extremities. As a result, he cannot feel when it is time to pee. He can go on command, but he never feels the urge to go on his own. He had a series of tests to see the extent of the damage. We saw the initial report on Friday. In that report, a doctor (the hospital physician) had recommended that we begin catheterization, basically inserting a small tube every 2-3 hours to relieve his bladder. This was not welcome information to say the least.
But today when we spoke to his regular urologist, he said that catheterization would be a last ditch effort if he was having extreme kidney pressure and frequent infections (he has had none to date). He did prescribe a new drug (Ditropan). This brings the grand total to 10 drugs a day. But a drug was way way way more preferable to an invasive procedure every 2-3 hours. The doctor did recommend that we get him a watch with a countdown timer to prompt him throughout the day. No biggie there.
On the other front, Ethan has/d a small syrinx (tumor) on his spine. If it grew, there was a possibility that he would loose functionality/mobility over time. Well the latest MRI showed that is was gone. Now normally I am too cynical to throw around the word miracle, but I am not quite sure what else to call it. There was a tumor, it was growing, and then it was gone. It is funny, I pray all the time. But I never really expect anything to come of it. Guess God is not finished with me yet.
We are far from out of the woods. But at least for today, there is a ray of sunshine.